I Have Tourette Syndrome (Guest Post)

June 10, 2014 | 108 Comments

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  • http://nomadmomdiary.com/ Lynn Morrison

    You are so brave to come out and share your story. I love this post because this is a syndrome that so many of us have heard of, but most of us know nothing about. I learned a lot just reading through this. I hope that you will continue to educate us on your situation and what we can do to help you feel comfortable!

    • Annelie

      Thank you, Lynn!

  • Shayna Murray

    Oh boy I can relate to this. Well sort of. My four year old has anxiety and has a few tics including throat clearing and echolalia. They come and go, along with her anxiety. The echolalia is quite intermittent and, at this point, infrequent, but when it comes it torments her. Often she just “says” things in her head but she is convinced she said them out loud. You can’t convince her otherwise. We’ve learned to just “roll with it”. And by roll with it I don’t mean pretend we don’t have an issue. We do seek out professional help but like you said, suppressing a tic is just not an easy thing to do.

    Thank you for sharing your story. It’s really helpful, as a parent, to see things from this perspective. I don’t know that our daughter has tourettes, most likely not, we believe it’s part of her anxiety, but there are similarities.

    • Annelie

      I’m really glad it helped you. I’ve been helped so much by other peoples’ writings so I’m glad I could pass it on. I wish the best for your daughter!

  • http://missteenussr.com Brooke Takhar

    Having something that I know so very little about explained in such an engaging but matter of fact way – this was everything. Thank you. So very much. I don’t know much but now I know a whole lot more about Tourette Syndrome.

    • Annelie

      Thanks for reading it and for your comment! :)

  • Anne A. Radcliffe

    Thanks! This was a fascinating read. I admit I knew about motor tics and swearing, but I didn’t know other words could also become tics too. Lots of great information on a subject most people haven’t encountered in the flesh, so to speak. 😃

    • Annelie

      Yes, it’s a rare condition. So when I meet a person who knows someone else with TS, it’s usually a big help to me. Thanks for reading.

  • http://abandoningpretense.blogspot.com/ Abandoning Pretense

    I’ve read about Tourette’s before but no piece I’ve read has made it so interesting, relatable, and… funny! I know you were talking about your experience with Tourette’s, but for me, YOU shined through. I hope you’ll keep writing, and not just about Tourette’s. =)

    • Annelie

      Wow, thanks AP!

  • Stacey Olson

    Fabulous explanation and a well written piece. I like that you have a sense of humour about your TS. It’s refreshing, honest and admirable.

    • Annelie

      Thank you, Stacey!

  • CocodeRojas

    Comment attempt take 2! What an incredible post. Here I thought I knew about Tourette’s when in fact i was completely clueless. As someone who feels extreme empathy and fears situations where I am not sure how to act, I am particularly grateful for this very detailed post. And on top of it it was so engaging, moving, and as someone else said extremely relatable. I can’t thank you enough.

    • Annelie

      I was in the same boat, thinking I knew what I needed to know, even while I had it! Thank you for your comment! :)

  • Cody Norris

    Very well written and even having spoken with you about it, I still learned some things. Thank you!

    • Annelie

      Thanks Cody! I start to forget who I’ve told, and how much I’ve told them, so this article was everything I wished I could fit into each “disclosure” about TS.

  • Johnnyq

    M’Lady, you have done a great justice to this syndrome and its participants. Well written too. I think if you were to find the right person (any neurologist) at the Mayo Clinic in Rochester Mn. or Boston Mass. General I think your words would hit an even wider audience. It is not just us General Public folks that benefit but the families and children who are just becoming acquainted with this issue in their own life. Your words offered survival strategies, insight into the future as well as advice for those uninitiated. Well done.

    • Annelie

      Thank you Johnnyq.

  • http://books.moonsoar.com/ Courtney Wilson

    Thank you for sharing your story Annelie. I love this post. This is an extremely brave post, and I’ve learned a lot from hearing from someone with Tourette Syndrome.

    • Annelie

      Great! :)

  • http://raisingmyboys.net/ Deborah Coombs

    My only experience with TS was with an acquaintance who had a pretty severe case of the “cursing disorder” kind. Great guy, but wow could he be offensive and loud. Unintentionally of course, but anyone who didn’t know would get seriously turned off. Thank you for writing this and educating us all about the different ways in which TS can present. I especially appreciate your do’s and don’ts. Well-meaning reactions can often be offensive, and it’s nice to have these insights!

    • Annelie

      I’m lucky that I don’t tend to scare people, I fall more into the “confusing” category. Thank you for leaving a comment!

  • Journeysof TheZoo

    Dear Annelie, I know several people with tourette’s syndrome and they have feelings and bleed just like the rest of us. I hope that in sharing your story, people have learned something about you and others that have your syndrome. Besos, Sarah

    • Annelie

      Yes, I hope so too, thank you Sarah!

  • Sandy

    I love, love, love this post! From one who has recently shared my own disability with my readers, I can totally relate this, even though it is very different from my experience. I thought I knew a lot about TS but, apparently I was wrong. I learned so much from your post that I’ve bookmarked it and will be sure to share it with anyone who ever talks to me about TS. It is wonderfully written! At the same time is is informative and full of raw honesty, it is also side-splitting funny! A good sense of humour is a must when you live with a debilitating disability. My favourite line “Shitballs in your mouth” makes me think of many times I’ve seen people awkwardly look away from someone with TS, or someone with a severe stutter, and pretend like nothing happened. I know people feel awkward but…people really need to stop that. What is awkward is just ignoring it. I love how you explain to people how they should acknowledge the tic. I truly think you have done a fabulous job of sharing your story and, for anyone out there suffering from this syndrome, I can safely say that I bet they would all want to give you a big hug after reading this. If you haven’t already, I would share this with a Canadian chapter of the TS Syndrome Association (if there is one, and I’m sure there is). I think they would love to read this! Bravo on having the courage to tell your story, Annalie – I have no doubt you will help many by doing this :) XO

    • Shannon Fisher

      Great idea! I just tweeted the Canadian branch. Thanks, Sandy!

      • Sandy

        Good! I’m certain they will love it :)

  • http://www.shasherslife.com/ Shash

    Thank you for being so open and conveying such an important message, there needs to be more education and understanding about it because until just now, I didn’t know about 80% of what you shared. Stereotypes suck. So thank you for enlightening us! I hope this post goes viral… :)

    • Annelie

      Thanks Shash!

  • tarasview

    this is a fantastic post. My 10 year old son is currently being “assessed” for TS. Thanks for sharing your story :)

    • Annelie

      Sending good thoughts for your son!

      • tarasview

        thanks :)

  • Christa Clips

    I had no idea that TS could start later in life. Learned a lot and was reminded that disability is not a swear word. Contextual, or otherwise!!! Thanks

    • Annelie

      Technically I had TS all along, it’s just the the symptoms suddenly worsened, enough for me to seek out a doctor. :)

  • Annelie

    I think I should probably add, in case anyone reads down this far, that I doubt everyone with TS wants their tics to be acknowledged. There are so many different tics and I think some (maybe most??) prefer them to just be ignored!

  • DirtAndFrosting

    Just found this post, so sorry for the late comment. Thank you so much for writing this. I don’t suffer from Tourette Syndrome, although I do have motor tics- an arm or leg will just flail or jump, occasionally my neck will get in on the action. I’ve had them since I was a kid but didn’t see a neurologist until high school. I see so many things on the web by parents of children with tics but never adults speaking out. The wacky feeling of suppressing tics (and knowing it’s going to come out sooner or later), or explaining them (no, I’m not epileptic, thank you), the dichotomy of don’t laugh at me but don’t pretend like nothing happened either- it’s so nice to hear someone saying the things that have been in my head.

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